10/10/24 – New white paper published: “Enhancing Diversity and Quality in Health Data” Read white paper
An independent alliance of leading healthcare and research organisations united to establish best practice for the ethical use of UK health data for research at scale.
Join over 100 leading healthcare and research organisations on a mission to accelerate improvements in biomedicine, health and care through the trustworthy and responsible use of health data for research and innovation.
The UK Health Data Research Alliance is marking five remarkable years of progress and commitment to maximising the benefits of health data research for all.
The Alliance aims to become an internationally recognised and influential network that enables and demonstrates trustworthy use of health-related data for research and innovation.
The diversity and depth of perspectives fosters cross-sector collaboration.
to share knowledge, reduce duplication and extend the reach and influence of the Alliance.
to improve the findability, accessibility, interoperability & reusability (FAIR) of data
"The pharmaceutical industry relies on access to anonymised health data to develop new medicines and vaccines, enable patients to have access to them and ensure they are effective and safe once in routine NHS use. Configuring the UK health data ecosystem to facilitate research, whilst safeguarding patient confidentiality, is a goal shared by the whole research community, including ABPI members"
Dr Janet Valentine, Executive Director of Innovation and Research Policy at ABPI
Explore the workstreams of the Alliance:
We're keen to hear from you if you have ideas, questions or comments - including if you would like to discuss opportunities to collaborate with us.