The Alliance has created alignment around data custodian standards, each with buy-in from the member organisations. These standards are fundamental to enabling a collaborative and coordinated approach to health data across the UK, and include: 

 

Data Standards and Quality
Metadata Specification for Innovation Gateway
February 2022
Recommendations for Data Standards in Health Research White Paper
November 2021
Data Standards Green Paper
June 2021
Data Utility Framework Green Paper
March 2021
Data Utility Framework
November 2020
Principles for Data Standards
June 2020
Metadata Specification to Support Gateway Minimum Viable Product
November 2019
Data Access and Use
Five Safe Data Access Request Application Form
February 2022
The Gateway data use register: an implementation of the standard, via the Innovation Gateway.
January 2022
Improving Transparency in the Use of Health Data for Research: Recommendations for a Data Use Register Standard
January 2022
Statement of Support to Implement Recommendations from the Public Advisory Board to Improve Transparency of Data Access Processes
July 2021
Improving Transparency in the use of Health Data for Research: Draft Recommendations for a Data Use Registers Standard
July 2021
Community statement from 240 leading health data scientists on the use of health data for research to save lives in response to public concerns over the proposed NHS General Practice Data for Planning
June 2021
Data Use Registers analysis preprint
May 2021
Trusted Research Environments (TRE's)
Principles and Best Practice for Trusted Research Environments
December 2021
Trusted Research Environments Green Paper
July 2020
Capacity Building
Black internship programme 2021, with 48 interns participating across 23 health data research organisations.
July 2021
Alliance Board meetings
Alliance Board meeting minutes
Jan 2020 - Current