Aim

To establish a regular forum for stakeholders to discuss barriers to effective use of healthcare systems data (HSD) in clinical trials, how these can be addressed and to prioritise the necessary actions to realise these potential benefits. This forum will facilitate an exchange of ideas between data providers, consumers of trial results and the clinical trials community. This includes prioritising, providing, endorsing, or commissioning research and/or practical guidance on obtaining and using HSD efficiently, with internationally reliable interpretability.

Inaugural meeting

On the 5th December, the Alliance convened key stakeholders and initiated a series of meetings aimed at fostering dialogue among data providers, trial result consumers, and the broader trials community.

Chaired by Professor Matt Sydes and Associate Professor Marion Mafham, the meeting saw over 50 participants from various health research and clinical trials sectors coming together to discuss challenges in delivering data-enabled trials.

Objectives:

  1. Articulate the forum rationale, purpose, and the challenges in delivering data-enabled trials.

Presentations:

The meeting summary document can be found here.

Future meetings have been scheduled for the following dates.

  • Thursday 18th April 2024 (14:00 – 15:30)
  • Wednesday 11th September 2024 (14:00 – 15:00)