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wdt_ID wdt_created_by wdt_created_at wdt_last_edited_by wdt_last_edited_at Item ID Field Information
6196 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Name Cohort Discovery Service
6197 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Name Health Data Research Gateway
6198 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Name Safe People Registry
6199 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Name HDR UK Futures Training Platform
6200 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Name OMOP Real-World Evidence Network (UK)/HERON-UK
6201 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Name Data Utility Comparison Studies (DUCkS) Framework for Clinical Trials Using Healthcare Systems Data
6202 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Description A federated, privacy-preserving querying service that enables researchers to assess cohort feasibility and availability across multiple data custodians without any patient-level data leaving the source environment. Built on the OMOP Common Data Model and integrated into the Health Data Research Gateway, the Cohort Discovery Service helps researchers identify suitable datasets before making formal data-access requests.
6203 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Description The Gateway streamlines the end-to-end user journey to search, discover and request access to the wealth of health and associated Datasets, Analysis Scripts & Software, Publications and Research Projects from across the UK and beyond.
6204 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Description A platform to streamline 'safe people' decision-making for granting access to sensitive data.
6205 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Description An online learning platform providing training and professional development in health data science, governance and secure research practices.
6206 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Description A UK-wide network using the OMOP common data model to support federated analytics, multi-site studies and scalable real-world evidence research.
6207 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Description A methodological framework for assessing whether routinely collected healthcare data are sufficiently complete and reliable for use in clinical trial follow-up and outcome assessment.
6208 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Adoption Pack Link Adoption pack
6209 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Adoption Pack Link Adoption pack
6210 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Adoption Pack Link Adoption pack
6211 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Adoption Pack Link Adoption pack
6212 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Adoption Pack Link Adoption pack
6213 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Adoption Pack Link Adoption pack
6214 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Contact team/person Sangya Pundir
6215 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Contact team/person Melissa Konopko
6216 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Contact team/person Wendi Bacon
6217 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Contact team/person Capacity Building
6218 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Contact team/person Alex Knight
6219 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Contact team/person Macey Murray
6220 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Categories Service
6221 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Categories Service
6222 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Categories Service
6223 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Categories Training Product
6224 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Categories Service
6225 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Categories Framework
6226 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Primary Purpose Discovery or navigation, data linkage
6227 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Primary Purpose Discovery or navigation, data access enablement, data linkage
6228 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Primary Purpose Governance or assurance, data access
6229 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Primary Purpose Training or workforce development
6230 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Primary Purpose Guidance and support for public involvement
6231 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Primary Purpose Discovery or navigation, Governance or assurance
6232 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Intended users Data custodians, SDE/TRE teams, Researchers, Clinical trial planners
6233 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Intended users Researchers, NHS teams, Industry, Funders, SDE/TRE teams, Data custodians
6234 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Intended users Data custodians, SDE/TRE teams, Researchers, Host Organisations
6235 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Intended users Researchers, NHS teams, Data custodians, Students
6236 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Intended users Researchers, Public involvement teams, NHS teams
6237 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Intended users Data custodians, SDE/TRE teams, Researchers
6238 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Primary Contact Route URL
6239 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Primary Contact Route URL
6240 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Primary Contact Route Email
6241 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Primary Contact Route URL
6242 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Primary Contact Route URL
6243 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Primary Contact Route URL
6244 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Primary Contact Detail https://hdruk.atlassian.net/servicedesk/customer/portal/7/group/14/create/243
6245 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Primary Contact Detail https://hdruk.atlassian.net/servicedesk/customer/portal/7/group/82/create/78
6246 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Primary Contact Detail enquiries@safepeopleregistry.org
6247 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Primary Contact Detail https://hdruklearn.org/
6248 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Primary Contact Detail https://heron-uk.github.io/heron-uk/
6249 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Primary Contact Detail https://www.sciencedirect.com/science/article/pii/S1551714424000971
6250 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Originator Type HDR UK
6251 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Originator Type HDR UK
6252 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Originator Type HDR UK
6253 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Originator Type HDR UK
6254 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Originator Type HDR UK
6255 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Originator Type Academic Institute
6256 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Link
  1. https://healthdatagateway.org/en/about/cohort-discovery
6257 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Link
  1. https://healthdatagateway.org/en
6258 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Link
  1. https://safepeopleregistry.org/en
6259 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Link
  1. https://www.hdruk.ac.uk/study-and-train/learn-with-hdr-uk-futures/
6260 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Link
  1. https://heron-uk.github.io/heron-uk/
6261 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Link
  1. https://www.sciencedirect.com/science/article/pii/S1551714424000971
  2. https://www.ucl.ac.uk/population-health-sciences/clinical-trials-and-methodology/study/short-courses/using-healthcare-systems-data-clinical-trials-data-utility-comparisons-ducks-workshop
  3. https://www.innovative-ctu.ucl.ac.uk/news/news-stories/2024/may/why-clinical-trials-need-data-utility-comparisons-of-healthcare-systems-data/
6262 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Originator Orgs HDR UK
6263 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Originator Orgs HDR UK
6264 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Originator Orgs HDR UK
6265 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Originator Orgs HDR UK
6266 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Originator Orgs HDR UK, Oxford, GOSH, Barts, UCLH, LTHT, LTH, DataLoch, CPRD
6267 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Originator Orgs University College London
6268 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Context of use Used during study design and feasibility assessment to identify relevant cohort counts and assess dataset suitability without exposing identifiable data.
6269 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Context of use Used by researchers, analysts and organisations to discover UK health datasets, research resources, tools and services through a national metadata catalogue.
6270 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Context of use Researchers/innovators make profiles, Organisations make profiles and affiliate those individuals, and Data Custodians use those profiles and affiliations to make decisions about whether individuals are deemed 'safe people' to access sensitive data for their project.
6271 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Context of use Used by researchers, analysts and health data professionals for training and professional development in health data science and governance.
6272 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Context of use Used across multi-site and federated real-world evidence studies requiring standardised analytics using the OMOP common data model.
6273 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Context of use Used within randomised controlled trials, pragmatic trials and registry-enabled trials where healthcare systems data may support participant follow-up, outcome ascertainment or endpoint validation. Applicable to NHS datasets, disease registries, electronic health records and administrative healthcare datasets linked to trial participants.
6274 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Readiness tier Established
6275 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Readiness tier Established
6276 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Readiness tier Established
6277 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Readiness tier Established
6278 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Readiness tier Emerging
6279 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Readiness tier Emerging
6280 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 DOI Link https://doi.org/10.1016/j.cct.2024.107642
6281 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Maturity - TFS Productisation
6282 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Maturity - TFS Growth
6283 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Maturity - TFS Productisation
6284 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Maturity - TFS Growth
6285 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Maturity - TFS Growth
6286 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Maturity - TFS Pilot
6287 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Primary Use Case
  1. Researcher or clinical trial planning feasibility assessment across multiple datasets before submitting a data access request.
  2. Multi-custodian study design using aggregate cohort counts without exposing patient-level data.
  3. Identification of suitable datasets and custodians for a planned research study.
6288 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Primary Use Case
  1. Supports discovery of UK health datasets, research resources and tools through a national metadata catalogue.
  2. Enables researchers and organisations to identify relevant datasets and services for research planning.
  3. Improves visibility and accessibility of UK health data assets across organisations.
6289 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Primary Use Case
  1. Enables researchers and their organisations to provide 'safe people' credentials once, in a Safe People Registry profile, rather than repeatedly via many avenues for each project and custodian they work with.
  2. Enables Custodians to be automatically notified when any of their users leave an organisation, prompting the custodian to remove access from those individuals.
  3. Enables Custodians to scale user validation, through reusable, customisable checklists, automated flags, and automated audit logs.
6290 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Primary Use Case
  1. Supports national data science skills development.
  2. Provides accessible online learning for health data science and governance.
  3. Supports workforce development across research and NHS communities.
6291 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Primary Use Case
  1. Supports federated analysis across institutions.
  2. Enables use of the OMOP common data model for multi-site studies.
  3. Supports scalable real-world evidence generation and reusable analytics.
6292 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Primary Use Case
  1. Can be used within clinical trials to compare routinely collected healthcare data against trial-adjudicated outcomes and assess suitability for trial follow-up.
  2. Can support development of data-enabled and registry-enabled trials by identifying which outcomes can be reliably captured using healthcare systems data.
  3. Can inform regulators, sponsors and funders on the appropriate use of healthcare systems data within clinical trials and long-term follow-up studies.
6293 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Intended outcomes Improved study planning efficiency and reduction in unsuccessful or premature data access requests.
6294 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Intended outcomes Reduced duplication, improved discoverability and more efficient research collaboration.
6295 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Intended outcomes Less time spent on the administration of 'safe people' validations, and with higher security and assurance of said validations.
6296 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Intended outcomes Increased capability and confidence in using health data securely and effectively.
6297 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Intended outcomes Improved interoperability, scalability and consistency of analytical methods.
6298 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Intended outcomes Improved efficiency of clinical trial delivery through reduced duplication of data collection and greater use of routinely collected healthcare data where appropriate. Supports evidence-based adoption of data-enabled trial methods and improved understanding of the strengths and limitations of healthcare systems data for different outcome types.
6299 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 What it is not Not a data access platform. Does not provide or expose identifiable or patient-level data.
6300 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 What it is not Not a repository for downloadable identifiable data.
6301 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 What it is not Does not provide data access to researchers.
6302 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 What it is not Not a formal academic qualification or accreditation framework.
6303 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 What it is not Not a centralised national dataset or replacement for local data governance controls.
6304 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 What it is not This is not a replacement for randomised controlled trials or a validation that healthcare systems data are suitable for all trial purposes. The framework does not remove the need for endpoint adjudication, governance approvals or trial-specific assessment of data quality and completeness.
6305 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 No's Adopting 14
6306 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 No's Adopting 100000
6307 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 No's Adopting 20
6308 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 No's Adopting 65000
6309 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 No's Adopting 7
6310 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 No's Adopting 3
6311 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Adoption Examples/Evidence of Use Used nationally by data custodians across all four UK nations to support researcher and clinical trialist feasibility queries, including primary care data via CPRD, Scottish population-level data via Public Health Scotland, and rolling out across the NHS SDE England network.
6312 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Adoption Examples/Evidence of Use Used nationally by researchers, NHS organisations, industry and funders to discover datasets and research resources across the UK health data ecosystem.
6313 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Adoption Examples/Evidence of Use Four Custodians have gone live, 10 more are on our pre-production system. This does not count the Organisations and researchers associated with projects at those Custodians.
6314 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Adoption Examples/Evidence of Use NHS organisations, universities, HDR UK training and professional development activities.
6315 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Adoption Examples/Evidence of Use Oxford, UCL, Imperial and wider OMOP/real-world evidence collaboration activities.
6316 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Adoption Examples/Evidence of Use
  • The framework builds on published comparison studies between trial-adjudicated datasets and routinely collected healthcare data, including:
  • Harper et al. (2021): comparison of serious vascular events in ASCEND.
  • Harper et al. (2023): comparison of major bleeding events using UK routine data.
  • Macnair et al. (2023): comparison of cardiovascular trial data with healthcare systems data.
  • The methodology has also informed workshops and methodological activities within UK clinical trials infrastructure.
6317 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Reg Users / Access No's 2025 Not publicly reported
6318 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Reg Users / Access No's 2025 50000
6319 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Reg Users / Access No's 2025 Not publicly reported
6320 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Reg Users / Access No's 2025 65000
6321 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Reg Users / Access No's 2025 Not publicly reported
6322 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Reg Users / Access No's 2025 Not formally tracked
6323 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Preconditions Data custodians require standardised OMOP-mapped data, with a Gateway metadata page (can be processed as part of the onboarding workflow).
6324 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Preconditions Availability of dataset metadata and participation from contributing organisations.
6325 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Preconditions Custodians must use the Safe People Registry for it to be valuable to researchers and their organisations.
6326 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Preconditions Access to online learning infrastructure and maintained training content.
6327 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Preconditions Availability of OMOP-mapped datasets and participating analytical sites.
6328 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Preconditions Access to linked healthcare systems datasets and clinical trial datasets; information governance approvals; secure data linkage capability; and expertise in clinical coding systems and trial methodology.
6329 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Constraints Discovery and feasibility outputs dependent on metadata quality and dataset coverage.
6330 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Constraints Metadata completeness and quality may vary between contributors and over time.
6331 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Constraints UK Data Custodians only
6332 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Constraints User engagement and impact dependent on uptake and ongoing content relevance.
6333 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Constraints Variable maturity and consistency of OMOP implementation across organisations.
6334 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Constraints Performance varies depending on the outcome type, coding quality, completeness and timeliness of healthcare systems data. Some outcomes may require additional adjudication or supplementary trial data collection.
6335 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Dependencies Gateway metadata catalogues, Bunny/BC|Insight query tools, OMOP-mapped data, SDE to host data collections.
6336 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Dependencies Contributing data custodians, metadata standards, catalogue infrastructure and ongoing data stewardship.
6337 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Dependencies Organisation onboarding makes it a lot easier for Custodians and researchers.
6338 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Dependencies Subject matter experts, digital learning platforms and training providers.
6339 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Dependencies OMOP common data model, federated analytics infrastructure and participating institutions.
6340 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Dependencies Dependent on access to NHS datasets, disease registries or electronic health records; secure linkage infrastructure; standardised coding systems such as ICD-10 and SNOMED CT; and appropriate governance arrangements.
6341 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Cost / commercial model Free
6342 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Cost / commercial model Free
6343 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Cost / commercial model Free
6344 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Cost / commercial model Free
6345 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Cost / commercial model Cost recovery
6346 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Cost / commercial model Free
6347 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Cost / commercial model details Research-funded; no commercial model defined
6348 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Cost / commercial model details Research-funded; no commercial model defined
6349 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Cost / commercial model details Research-funded; no commercial model defined
6350 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Cost / commercial model details Research-funded; no commercial model defined
6351 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Cost / commercial model details Via negotiation
6352 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Cost / commercial model details Developed through publicly funded academic and clinical trials methodology research programmes. The framework is described in openly available peer-reviewed publications and is not subject to a commercial licensing model.
6353 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 License Open Source
6354 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 License Open Source
6355 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 License Open Source
6356 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 License CC-BY
6357 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 License Not Applicable
6358 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 License Custom Terms
6359 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Support level Supported service
6360 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Support level Supported service
6361 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Support level Supported service
6362 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Support level Supported service
6363 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Support level Supported service
6364 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Support level Light-touch
6365 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Engagement pathway
  1. Register for a Gateway account, request access to Cohort Discovery and build your queries,
  2. Deploy the open-source Cohort Discovery Service within your own system or environment.
  3. Contact HDR UK to explore coming on board with the Cohort Discovery Service as a data custodian.
6366 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Engagement pathway
  1. Search or browse metadata catalogue
  2. Dataset or resource discovery using filters and search tools
  3. Optional contact with dataset custodians through listed routes
  4. Integration with wider HDR UK discovery and access pathways
6367 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Engagement pathway
  1. Register to make an Organisation account, or be invited by a Data Custodian or researcher.
  2. Register to make a Researcher account, or be invited by an Organisation or Data Custodian.
  3. Contact HDR UK to be granted a Custodian account
6368 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Engagement pathway
  1. Access online training catalogue
  2. Register for relevant learning modules or pathways
  3. Participate in webinars, workshops or training sessions
  4. Optional certification or CPD-linked activities where available
6369 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Engagement pathway
  1. Initial enquiry regarding OMOP or federated study opportunities
  2. Technical and methodological scoping discussion
  3. Potential collaboration discussion across participating sites
  4. Optional exploration of multi-site analytics or study participation
6370 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Engagement pathway
  1. Initial methodological enquiry outlining trial context and proposed use of healthcare systems data
  2. Scoping discussion to confirm suitability and available comparator datasets
  3. Share methodological guidance, published examples and comparison approaches
  4. Optional collaboration or advisory discussion with research partners
6371 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Response expectations Public platform with near-instant query response. Quick response times for access requests within days.
6372 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Response expectations Public platform available continuously; response times dependent on dataset custodians
6373 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Response expectations Public platform available continuously; response times dependent on Data Custodians
6374 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Response expectations Immediate access for public content; scheduled delivery for facilitated sessions
6375 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Response expectations Timelines dependent on participating sites and study scope
6376 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Response expectations 10–15 working days subject to research capacity
6377 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Ownership boundary Service supports feasibility and discovery only; does not provide direct data access or act as data controller.
6378 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Ownership boundary Gateway provides access to submitted metadata discovery and routing only; does not provide direct access to identifiable datasets or approve applications.
6379 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Ownership boundary Registry surfaces information, does not confirm or check whether credentials are valid nor make decisions for Data Custodians.
6380 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Ownership boundary Platform provides training resources and coordination; does not guarantee competency, accreditation or workforce placement.
6381 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Ownership boundary Network facilitates collaboration and methodological alignment; participating organisations retain local governance and analytical responsibility.
6382 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Ownership boundary Framework provides methodological support and shared learning; does not provide trial delivery, regulatory approval or endpoint adjudication services.
6383 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571421 Related or alternative capability
    6384 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571422 Related or alternative capability
      6385 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2985571442 Related or alternative capability
      1. notifications for all users of the system (Researchers, Organisations, Custodians) to keep apprised of status changes or training/security expirations. Automated notifications for all users of the system (Researchers, Organisations, Custodians) to keep apprised of status changes or training/security expirations. - https://Automated
      6386 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924988403 Related or alternative capability
        6387 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924987811 Related or alternative capability
          6388 Alex Knight 25/09/2026 12:42 PM Alex Knight 25/09/2026 12:42 PM 2924992725 Related or alternative capability
            Item ID