The UKCRC Tissue Directory and Coordination Centre (TDCC) works to help researchers discover human samples and data, help sample resources improve their data systems for sharing, and harmonise policy relating to the discovery and use of samples and data.
The UKCRC TDCC is also the UK node of BBMRI-ERIC; providing a gateway for biobanking in Europe.
The UKCRC Tissue Directory and Coordination Centre is a national directory of human sample resources.
The Directory catalogues over 400 sample collections, held by over 200 human sample resources (biobanks, cohort studies, biorepositories, clinical trials etc.). Researchers can search by gender, age, and disease to either find banked samples or resources that can acquire bespoke collections. Sample resource contact details and collection information are held on the directory to allow researchers to request access to the datasets. No datasets are held by UKCRC TDCC.
“We are thrilled to be part of such an exciting endeavour to ensure that the UKs most valuable resources can be fully utilised for high quality research with the purpose of improving the health of the nation. It is exciting to see the UKs sample resources being represented in this consortium as they often contain some of the richest datasets as well as biological samples making them an invaluable asset in health data research. Our goals are to make sample resources more discoverable, to bring transparency across the research pathway in-line with FAIR principles and to ensure samples and data are used in research. We must never forget that members of the public and patients have donated samples and data in order to further advance our knowledge of disease and we must ensure we can deliver on their wishes. The UK Health Data Research Alliance is such a positive step in bringing the key national players together to make progress to remove some of the fragmentation that hinders research and hinders transparency.”