Four major health research organisations have recently joined the UK Health Data Research Alliance, demonstrating the value the partnership is providing in bringing the UK health research sector together to establish best practice around the access and use of health data for research and innovation.
The recently joined organisations are:
- Imperial College Healthcare NHS Trust
- Leeds Teaching Hospitals NHS Trust
- The Renal Association
By joining The Alliance, these organisations are already benefitting from working with partners across the sector by sharing learnings around the use of health data and driving best practice. Alliance members develop and coordinate the adoption of tools, techniques and technologies across five priority areas:
- Promoting participation and improving access
- Aligning approaches to Trusted Research Environments
- Data Standards and Quality
- Engaging practitioners, patients, and the public
- Supporting the development of the HDR Innovation Gateway (“The Gateway”)
In the coming months, these organisations will also make the datasets they host as “custodians” available to be listed on the Gateway, the UK’s unified platform to discover and access health data, demonstrating their commitment to open access for health data to be used for research and increasing the number of datasets available for research; ultimately leading to discoveries that will benefit patients.
David Seymour, Alliance Executive Director, Health Data Research UK:
“It is great to see our unique partnership of health research organisations continue to develop. In just over two years we have grown a powerful Alliance, demonstrating the desire across the sector to come together around the common cause of uniting health data that will make real and substantial improvements to the care we provide patients in the UK.”
You can read more about each of the new members and find a full list of all member organisations of the UK Health Data Research Alliance on our website.
New partners welcomed their membership:
Professor Julia Hippisley-Cox, Founder of QResearch:
“We are pleased to join the UK HDR Alliance and the opportunities this brings to generate more benefits for patients through the trustworthy use of anonymised data for research.”
Professor Dorothea Nitsch, Director of Informatics Research, the Renal Association:
“Joining the UK Health Data Research Alliance is a significant step for the UK Renal Registry and the Renal Association. We’re looking forward to working with the health data community towards using unified approaches to governance for using patient data, providing an appreciation on how fragmentation of care impacts on data capture and quality, and refining standards in documentation of these issues. We look forward to the research collaborations that will arise from working within the Alliance, the findings of which will improve the health and outcomes of our patients through better use of their data.”
Erik Mayer, Transformation CCIO for Analytics & Informatics, Imperial College Healthcare NHS Trust:
“I am delighted that Imperial College Healthcare NHS Trust is joining the UK HDR Alliance and we look forward to actively contributing, across several initiatives, towards the alliance’s shared vision of establishing and demonstrating best practice in the ethical use of healthcare data to benefit patients, carers and the public”
Geoff Hall, Professor of Digital Health and Cancer Medicine, University of Leeds:
“We’re delighted to further strengthen the relationship between Leeds and HDR-UK and look forward to contributing to the ground-breaking work that the Alliance enables.”