My name is Jan Speechley, I am from West Yorkshire and have a background in Education project management.

I am part of the Public Engagement in Data Research Initiative (PEDRI) working groups Best Practice Standards, Resources and Delivery. I spoke at a recent PEDRI event to give public and patient involvement and engagement (PPIE) perspective on its work.

I have extensive and varied PPIE experience for the National Institute for Health and Care Research (NIHR) (funding committee member and patient advisory board) NHS England (NHSE) (Medicines Optimisation CRG and Cancer Experience Survey Advisory Group) Cancer Research UK (CRUK) (working on their PPIE data strategy and Commercial Partnerships Panel) Health Data Research UK (HDR UK) (member of PAB and speaking at events and giving PPIE perspectives on initiatives) DATAMIND (member of research advisory group – leadership team). MQ (written blog on longitudinal datasets work – spoken at events/webinars – interviewed candidates for research fellowships)

I also work with PHD students at my local university advising on PPIE aspects of their research.

I am particularly interested in patient safety and medicines optimisation and data sharing to improve care and services and lives. I believe research is enhanced when good meaningful relationships are developed between researchers and those with lived experience and that training for PPIE contributors is an essential part of their involvement and engagement. I am actively involved in developing public trust in data sharing. I am currently involved in projects looking at using technology to improve processes and services for patients. I have recently had an opinion article published on mental health and AI.