The UK Health Data Research Alliance was established in February 2019 as an independent alliance of health data providers, custodians and curators dedicated to improving human health by maximising the potential of data to accelerate progress in biomedicine, health and care. It is made up of partner
organisations (members), each of which brings experience in domains relevant to its mission along with an outstanding record of and commitment to serving the public good.
As the ISCF funding comes to an end, we have been reviewing the current Alliance governance and Letter of Intent and have consulted a number of Alliance members and partner organisations to seek feedback and input into the next phase of the Alliance.
This report provides a summary of main themes and suggestions highlighted by Alliance members and partners during a consultation period between July and December 2022.
The ‘Gateway’ is a portal to help researchers find and access health datasets and other resources such as tools that exist across the Alliance, as well as other organisations in the UK and internationally. The Gateway has been developed with input from patients, the public, researchers and innovators working in health...
This workstream brings together Alliance members and the wider health data research community to discuss, define and develop standard approaches to Trusted Research Environments (TREs), also known as ‘Data Safe Havens’ or ‘Secure Data Environments’.
TREs are an essential way of managing risk of unauthorised...
Through the data standards and quality delivery workstream we bring together data officers from across the Alliance to oversee, coordinate, and produce guidance and policy regarding: data quality, data standards, meta data standards, dataset publishing, data provenance, ontology / terminology services and use.