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In January of 2022 the UK Health Data Research Alliance (the 'Alliance') published recommendations for a data use register standard. The standard outlines five recommendations to support data custodians and controllers responsible for the safe storage, processing and sharing of data, to become more transparent about whom,...

Alliance members are committed to being transparent around their governance processes for accessing data and the approved uses of that data. As such, publishing a register of projects, studies and organisations that have used data under their custodianship is a vital demonstration of this. The work of the Alliance...

This month sees the initial launch of The Brain Tumour Charity’s ‘Brain tumouR Information and Analysis Network' or BRIAN for short.