Understandable

This resource provides a cross sector approach to explaining the benefits of data science to the public and designing template materials for explaining complex concepts.

The DATAMIND glossary is a glossary of complex terms co-developed with public contributors.

Using the RECORD guidelines can improve transparent reporting of studies based on routinely collected data. This resource is tailored for studies using routinely collected data and helps improve clarity and replicability in research.

The Transparency Standards have been designed to guide best practice for transparency in data access processes for both researchers and the public, and have received feedback and consultation from multiple stakeholders.

This paper recommends the use of data use registers, which are public records of how data is being used for research, by who and for what purpose.

This paper focuses on improving the clarity, accessibility and consistency of data use registers, making information about health data more transparent and useable for all stakeholders.

This webpage offers public-friendly explanations and visuals on how health data is used, helping research be guided and understandable.

These infographics aim to raise public awareness of some of the most important laws and legal principles involved in the use of participants data for good public research. The infographics are designed to improve transparency of health data access processes. The infographic series is also available in audio, British Sign Language and several non-English language translations.