The Guided principle emphasises the need for data stewards and data users to listen to diverse voices and have sufficient humility to recognise the value of considering diverse perspectives and lived experiences. 

A robust public involvement and engagement (PIE) strategy enables citizens to contribute to and benefit from scientific progress. The public should be meaningfully involved in informing policies regarding data access and use and have a stake in data access decision-making processes. Recognising the value of the knowledge, values and practices of professional stakeholders across disciplines, cultures and traditions is critical in guiding effective data stewardship. 

Resources

PEDRI Good Practice Standards

The Public Engagement in Data Research Initiative (PEDRI) Good practice standards provide a structural framework when involving the public in data research governance; this framework was developed with public input.
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Paper: 'How to incorporate patient and public perspectives into the design and conduct of research.'

This article discusses how researchers can involve patients when they are applying for research funding and considers some opportunities and pitfalls. It reviews research funder requirements, draws on the literature and the authors' collective experiences as clinicians, patients, academics and members of UK funding panels.
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Public opinions on accessing public sector data for research in the public good

The report, published by Research Data Scotland (RDS), outlines findings from public workshops in areas including definitions of ‘public good’, ensuring the public has a voice in how data is used for research and private sector access to data.
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