Links to organisational data use registers
The below list includes approved projects, publications resulting from data uses and case studies of data uses.
Data Custodian | Link to Data Use Register (DUR) or equivalent |
Avon Longitudinal Study of Parents and Children (ALSPAC) | Click to view DUR |
BHF Data Science Centre | Click to view DUR |
Cancer Research UK | Click to view DUR |
Clinical Practice Research Datalink (CPRD) | Click to view DUR |
Confidentiality Advisory Group Register | Click to view DUR |
Coronavirus Clinical Characterisation Consortium (ISARIC-4C) | Click to view DUR |
COVID-19 Genomics UK Consortium | Click to view DUR |
Cystic Fibrosis Trust | Click to view DUR |
DataLoch | Click to view DUR |
DATAMIND Health Data Research Hub | Click to view DUR |
Dementia Platform UK | Click to view DUR |
Discover-NOW Health Data Research Hub | Click to view DUR |
Generation Scotland | Click to view DUR |
Genomics England | Click to view DUR |
Guy’s and St Thomas’ NHS Foundation Trust | Click to view DUR |
HDR UK NORTH | Click to view DUR |
Health and Social Care Northern Ireland (HSC NI) | Click to view DUR |
Health Informatics Centre – The University of Dundee | Click to view DUR |
Intensive Care National Audit & Research Centre (ICNARC) | Click to view DUR |
Lancashire Teaching Hospitals NHS Trust | Click to view DUR |
London Medical Imaging and AI Centre (LMIAIC) | Click to view DUR |
National Consortium of Intelligent Medical Imaging (NCIMI) | Click to view DUR |
Neonatal Data Analysis Unit – Imperial College London | Click to view DUR |
NHS Digital | Click to view DUR |
NHS England | Click to view DUR |
NHSX | Click to view DUR |
NIHR Bioresource | Click to view DUR |
NIHR Clinical Research Network | Click to view DUR |
NIHR Health Informatics Collaborative | Click to view DUR |
Office of National Statistics (ONS) | Click to view DUR |
Optimum Patient Care (OPC) | Click to view DUR |
Parkinson’s UK | Click to view DUR |
PathLAKE | Click to view DUR |
Pioneer Health Data Research Hub | Click to view DUR |
Public Health England (PHE) | Click to view DUR |
Public Health Scotland (PHS) | Click to view DUR |
QResearch | Click to view DUR |
Renal Association/Renal Registry | Click to view DUR |
SAIL DataBank | Click to view DUR |
South London and Maudsley NHS Foundation Trust | Click to view DUR |
The Industrial Centre for Artificial Intelligence Research in Digital Diagnostics (iCAIRD) | Click to view DUR |
The OPTIMAM Mammography Image Database (OPtimam DB) | Click to view DUR |
UK Biobank | Click to view DUR |
UKCRC Tissue Directory and Coordination Centre | Click to view DUR |
University Hospitals Coventry and Warwickshire | Click to view DUR |
Viking Genes | Click to view DUR |