A summary of responses to the UK Health Data Research Alliance (the 'Alliance') Green Paper on recommendations for Data Use Register standards.

The UK Health Data Research Alliance, convened by Health Data Research UK (HDRUK), is an independent alliance of large-scale health data custodians with the goal of developing and disseminating best practice for the ethical and responsible use of health datasets. Key to this is interaction with patients and disease advocacy...

The UK Health Data Research Alliance response to HDR UK’s Public Advisory Board Recommendations.

The UK Health Data Research Alliance is delighted to publish its latest green paper. It details recommendations for a data use registers standard. A data use register is defined as a public record of data an organisation has provided approved individuals and organisations secure access to for the purpose...

Earlier this month, the COVID-19 Genomics UK (COG-UK) consortium joined the UK Health Data Research Alliance. By becoming a member of this growing partnership, COG-UK will achieve three important objectives: we will work with Health Data Research UK (HDR UK) and over 50 “Alliance” members, creating a unified approach...

Four new organisations join “The Alliance”, working together to create a unified approach to use of health data across the UK.

Dr. Yvonne Silove – lead for Healthcare Quality Improvement Partnership’s Understanding Health Data Access shares the background to the project.

The second UK Health Data Research Alliance Symposium took virtually on 1 December 2020.