Data Safe Havens are an essential way of managing risk of unauthorised re-identification of individuals from de-identified data. This risk heightens with increased data linkage across a wider range of data sets. To date, most of the focus of Data Safe Havens has been on the people, processes and technology required to...

Three new members have joined the UK Health Data Research Alliance to support its goal of accelerating the use of health data to improve health and care across the UK. The new members will enrich and expand the range of datasets discoverable through the Innovation Gateway. This will include the Neonatal Data Analysis Unit at...

The inaugural UK Health Data Research Alliance Symposium took place in London on 4th February 2020. The event brought together more than 150 people working across the UK Health Data Research Alliance, Health Data Research Hubs, Innovation Gateway, Sandbox and others working closely with HDR UK on infrastructure.

Nine more health care and research organisations have signed up to join the UK Health Data Research Alliance to accelerate health discoveries using data in research. This boosts the Alliance membership to a total of 27 members – with over 400 datasets – each committing to make its data accessible for responsible research...

In order to reach our aim of maximising value of health data for research, it is important that as a community working across sectors that we are aligning around consistent standards for data to improve quality, interoperability, reuse, and translation to clinical care.

This month sees the initial launch of The Brain Tumour Charity’s ‘Brain tumouR Information and Analysis Network' or BRIAN for short.

People with cystic fibrosis are remarkably research-motivated and data-savvy. They have proven time and again to enthusiastically participate in research, even when the results may not directly benefit them.

Eight leading health organisations, research institutes and charities, including three of the UK’s largest NHS trusts – Barts Health, University Hospitals Birmingham and Nottingham University Hospitals – have announced today that they are joining the UK Health Data Research Alliance to accelerate progress in medicine...

After the sunshine and high temperatures of last week, one of the few benefits of a wet weekend in the East Midlands was the chance to watch the new Netflix documentary The Great Hack. This film details one of the most unethical uses of ‘big data’ in recent years – the Cambridge Analytica / Facebook scandal – and how...