In order to reach our aim of maximising value of health data for research, it is important that as a community working across sectors that we are aligning around consistent standards for data to improve quality, interoperability, reuse, and translation to clinical care.

This month sees the initial launch of The Brain Tumour Charity’s ‘Brain tumouR Information and Analysis Network' or BRIAN for short.

People with cystic fibrosis are remarkably research-motivated and data-savvy. They have proven time and again to enthusiastically participate in research, even when the results may not directly benefit them.

Eight leading health organisations, research institutes and charities, including three of the UK’s largest NHS trusts – Barts Health, University Hospitals Birmingham and Nottingham University Hospitals – have announced today that they are joining the UK Health Data Research Alliance to accelerate progress in medicine...

After the sunshine and high temperatures of last week, one of the few benefits of a wet weekend in the East Midlands was the chance to watch the new Netflix documentary The Great Hack. This film details one of the most unethical uses of ‘big data’ in recent years – the Cambridge Analytica / Facebook scandal – and how...

Health Data Research UK is pleased to kickstart Phase 1 of the Gateway development today with the launch of the procurement process for the Gateway Minimum Viable Product (MVP)

The NHS in England, Scotland and Wales along with Health and Social Care Northern Ireland, NHS Digital, Genomics England, Health Data Research UK, Public Health England and Clinical Practice Research Datalink (CPRD) announced today that they will create a non-profit association to accelerate progress in medicine and health.

An exciting new alliance will bring the UK’s leading academics together with forward thinking health data specialists, to develop new ways to design and support the medical research of the future, to improve the care patients receive from the NHS. The UK Health Data Research Alliance will focus on the best ways to design,...