The Digital Innovation Hub Programme represents a defined period of funding but was delivered to support the advancement of a much wider agenda – to harness the power of UK health data for public benefit. The programme’s instrumental effort has reshaped the health data research landscape and created lasting impact.

Following the recent publication of the Transparency Standards, HDR UK is pleased to be offering awards of up to £15,000 to support individual data custodians with adoption of the Standards.

Our healthcare system is complex and has evolved over time rather than developing in line with an agreed grand plan. Health data is no different and while the benefits from a more standardised approach to data are enormous, achieving this presents a significant challenge. Dr Chris Russell, Head of Delivery, Data for Research...

The Pan-UK Data Governance Steering Group is a working group of the UK Health Data Research Alliance (“Alliance”) representing data custodians and policymakers across the four nations.

Following a review of UK Health Data Research Alliance membership by the Secretariat and Alliance members, the Alliance welcomes for the first time non-data custodian organisations including two industry trade associations.

In 2021, the UK Health Data Research Alliance established the Ethnicity Coding Working Group to tackle the challenges and explore opportunities in the use of data reporting ethnicity. Paola Quattroni, Head of Alliance Strategy and Engagement, discusses the progress that has been made over the last two years and the future...

The UK Health Data Research Alliance is convening a Special Interest Group devoted to the OMOP Common Data Model, which will support the user community, including both those who are transforming data to OMOP, and those who are using transformed data for research. We hope that the group will provide a forum for users to share...

Today, three leading health organisations including a research institute and two research cohorts announced they too are joining the Alliance to develop best practice around the ethical use of health data to improve the population’s health outcomes.

As we move into the next phase of the Alliance, we are changing our governance and ways of working. ...