This privacy policy aims to give you information on how Health Data Research UK (as the convenor of the UK Health Data Research Alliance) collects and processes your personal data through your use of this website, including any data you may provide through this website when you sign up to our newsletter, provide information through the enquiry form on our website or by the contact email address listed on our website.


Health Data Research UK (“HDR UK”) is a limited company registered in England and Wales under company number 10887014 and its registered office is at 215 Euston Road, London, England, NW1 2BE

HDR UK is the convenor of UK Health Data Research Alliance.

HDR UK is the controller and responsible for your personal data (“we”, “us” or “our” in this privacy policy).

We have a [data protection officer (DPO) OR data privacy manager] who is responsible for overseeing questions in relation to this privacy policy. If you have any questions about this privacy policy, including any requests to exercise your legal rights as set out in this privacy policy, please contact the [DPO OR data privacy manager] using the following details:

Email: Enquires@hdruk.ac.uk

Postal address: Data Privacy Manager, Health Data Research UK, Gibbs Building, 215 Euston Road, London, NW1 2BE


Personal data means any information about an individual from which that person can be identified.

We may collect, use, store and transfer different kinds of personal information or data about you when you use this website. This may include:

  • Identity data including your first name and last name or similar identifier.
  • Contact data such as your email address or telephone number.
  • Technical data such as [internet protocol (IP) address, browser type and version and operating system and platform.]


We use different methods to collect data from you including through:

Direct interactions. You may give us your personal data by filling in the enquiry form on our website or corresponding with us by phone, email or otherwise, or when you sign up to our newsletter.

Automated interactions. As you interact with our website we will automatically collect technical data by using cookies or similar technologies. Please see our cookie policy for further details.


We will only use your personal data when the law allows us to. Most commonly, we will use your personal data in the following circumstances:

  • Where it is necessary for our legitimate interests and your interests and fundamental rights do not override those interests.
  • Consent.
  • Where we need to comply with a legal obligation.

We plan to use your personal data, and to rely on the legal bases, as set out below:

  • To respond to any enquiry you make, we will use your identity data and contact data. The legal basis for processing for this purpose will be our legitimate interests.
  • To provide you with our newsletter, we will use your identity data and contact data. The legal basis for processing for this purpose will be your consent.
  • To improve our website, we will use your technical data. The legal basis for processing for this purpose will be our legitimate interests.


We may share your personal data with internal employees who respond to an enquiry you make, manage our newsletter or manage our IT services.

We may also share your personal data with external third party system providers who will store your data.

We will not share your personal data with other third parties, unless you give your consent for us to do so, and we will not share your information with any other organisations for marketing, market research or commercial purposes.

We require all third parties to respect the security of your personal data and to treat it in accordance with the law. We do not allow our third party service providers to use your personal data for their own purposes and only permit them to process your personal data for specified purposes and in accordance with our instructions.

We may share your personal information with regulators or other authorities if we have a legal obligation to do so.


We do not transfer your personal data outside the United Kingdom.


We will only retain your personal data for as long as reasonably necessary to fulfil the purposes we collected it for.


Under certain circumstances, you have rights under data protection laws in relation to your personal data, including:

  • Request access to your personal data (commonly known as a “data subject access request”). This enables you to receive a copy of the personal data we hold about you and to check that we are lawfully processing it.
  • Request correction of your personal data. This enables you to have any incomplete or inaccurate data we hold about you corrected, though we may need to verify the accuracy of the new data you provide to us.
  • Request erasure of your personal data. This enables you to ask us to delete or remove personal data where there is no good reason for us continuing to process it. Note, however, that we may not always be able to comply with your request of erasure for specific legal reasons which will be notified to you, if applicable, at the time of your request.
  • Object to processing of your personal data. This enables you to object to processing of your personal data if you feel it impacts on your fundamental rights and freedoms or if we are using it for direct marketing purposes.
  • Request restriction of processing your personal data. This enables you to ask us to suspend the processing of your personal data in a number of different scenarios, such as where you want us establish the accuracy of the data.
  • Request transfer of your personal data. This enables you to request the transfer of your personal data to a third party. Note that this right only applies to automated information which you initially provided consent for us to use or where we used the information to perform a contract with you.
  • Right to withdraw consent. This enables you to withdraw your consent that we are relying on to process your personal data. If you withdraw your consent, we may not be able to provide certain services to you. We will advise you if this is the case at the time you withdraw your consent.

If you wish to exercise any of these rights, please contact us.

We may need to request specific information from you to help us confirm your identity and ensure your right to access your personal data (or to exercise any of your other rights). This is a security measure to ensure that personal data is not disclosed to any person who has no right to receive it. We may also contact you to ask you for further information in relation to your request to speed up our response.