Work

The Observational Medical Outcomes Partnership (OMOP) Common Data Model (CDM) is a standardized healthcare data model developed by the Observational Health Data Sciences and Informatics (OHDSI) community. It's designed to facilitate the analysis of healthcare data from multiple sources, including Electronic Health Records...

The UK Health Data Research Alliance was established in February 2019 as an independent alliance of health data providers, custodians and curators dedicated to improving human health by maximising the potential of data to accelerate progress in biomedicine, health and care. It is made up of partner organisations (members),...

The UK Health Data Research Alliance (the Alliance) recently organised a series of working group sessions to address the challenges and opportunities associated with utilising linked data for health research in the UK. These sessions aimed to improve accessibility to linked data, streamline data access processes, and enhance...

The Pan-UK Data Governance Steering Group is a working Group of the Alliance representing data custodians and policymakers across the four nations. The Steering Group is focused on simplifying and streamlining data access governance processes. The Challenge Researchers consistently cite difficulties in obtaining access to...

Alliance members are committed to being transparent around their governance processes for accessing data and the approved uses of that data. As such, publishing a register of projects, studies and organisations that have used data under their custodianship is a vital demonstration of this. The work of the Alliance...

Diversity in data is a cross-cutting theme which aligns with HDR UK’s diversity and inclusion policy. The Alliance has highlighted the need to address concerns around quality of data and missing samples that can hinder the reliability of scientific insights. We are now keen to bring communities together to discuss...

The aim of this workstream is to bring together representatives from Alliance members to share best practice in public and patient involvement. We run quarterly meetings for PPIE leads.

Through the data standards and quality delivery workstream we bring together data officers from across the Alliance to oversee, coordinate, and produce guidance and policy regarding: data quality, data standards, meta data standards, dataset publishing, data provenance, ontology / terminology services and use.

This workstream brings together Alliance members and the wider health data research community to discuss, define and develop standard approaches to Trusted Research Environments (TREs), also known as ‘Data Safe Havens’ or ‘Secure Data Environments’. TREs are an essential way of managing risk of unauthorised...