The UK Health Data Research Alliance (the ‘Alliance’) is an independent alliance of leading healthcare and research organisations united to establish best practice for the ethical use of UK health data for research at scale.
Its members include organisations representing national organisations, NHS trusts, research institutes and charities.
Together the members offer an exceptional opportunity to provide access to rich and diverse health data for research and innovation, in particular via the Health Data Research Innovation Gateway (the ‘Gateway’). Research based on data that reflects diversity of culture, healthcare conditions and aspects such as race, ethnicity, gender and age improves the ability to generalise results and enables new discoveries and understanding about disease. In turn this provides fairer and more equal access to the latest treatments and medical technologies, benefiting as many people across the UK as possible.
By working in partnership, the members of the Alliance are developing and co-ordinating the adoption of tools, techniques, conventions, technologies, and designs that enable the use of health data in a trustworthy and ethical way for research and innovation. The aim is to help researchers to answer some of the most difficult questions and address the most important health challenges faced in the UK.
Senior leaders from partner organisations join the Alliance Council to provide oversight and direction of the Alliance. Alliance Council meetings take place every quarter and are chaired by Andrew Morris, HDR UK’s Director.
Meeting minutes from past Alliance Council meetings can be viewed here