The UK Health Data Research Alliance (the ‘Alliance’) is an independent alliance of leading healthcare and research organisations united to establish best practice for the ethical use of UK health data for research at scale.

Its members include organisations representing national organisations, NHS trusts, research institutes and charities.

View full list of Alliance Members

Together the members offer an exceptional opportunity to provide access to rich and diverse health data for research and innovation, in particular via the Health Data Research Innovation Gateway (the ‘Gateway’). Research based on data that reflects diversity of culture, healthcare conditions and aspects such as race, ethnicity, gender and age improves the ability to generalise results and enables new discoveries and understanding about disease. In turn this provides fairer and more equal access to the latest treatments and medical technologies, benefiting as many people across the UK as possible.

By working in partnership, the members of the Alliance are developing and  co-ordinating the adoption of tools, techniques, conventions, technologies, and designs that enable the use of health data in a trustworthy and ethical way for research and innovation. The aim is to help researchers to answer some of the most difficult questions and address the most important health challenges faced in the UK.

Senior leaders from partner organisations join the Alliance Council to provide oversight and direction of the Alliance. Alliance Council meetings take place every quarter and are chaired by Andrew Morris, HDR UK’s Director.

Meeting minutes from past Alliance Council meetings can be viewed here

Administrative Data Research UK (ADR UK)
Alleviate
Association of British HealthTech Industries (ABHI)
Association of British Pharmaceutical Industries (ABPI)
Association of Medical Research Charities (AMRC)
Avon Longitudinal Study of Parents and Children (ALSPAC)
Barts Health NHS Trust
BioIndustry Association (BIA)
BREATHE
British Heart Foundation Data Science Centre
British Regional Heart Study (BRHS)
Cambridge University Hospitals NHS Foundation Trust
Cancer Research UK
Cardiff University
Centre for Longitudinal Studies (CLS)
Clinical Practice Research Datalink (CPRD)
COVID-19 Genomics UK (COG-UK)
Cystic Fibrosis Trust
DATA-CAN
DataLoch
DATAMIND
Dementias Platform UK
Discover-NOW
Generation Scotland
Genomics England
Gloucestershire Hospitals NHS Foundation Trust
Grampian Data Safe Haven (DaSH)
Great Ormond Street Hospital for Children NHS Foundation Trust (GOSH)
Gut Reaction
Guy's and St Thomas' NHS Foundation Trust
Health and Social Care Northern Ireland (HSCNI)
Health Informatics Centre – The University of Dundee
Healthcare Quality Improvement Partnership (HQIP)
Human Fertilisation and Embryology Authority (HFEA)
IBD Registry Ltd
Imperial College Healthcare NHS Trust
INSIGHT
Intensive Care National Audit & Research Centre (ICNARC)
Lancashire & South Cumbria NHS Foundation Trust
Lancashire Teaching Hospitals NHS Trust (LTHTR)
Leeds Teaching Hospitals NHS Trust 
Manchester University NHS Foundation Trust
MRC Brain Bank Networks
MRC Regulatory Support Centre
MRC Unit for Lifelong Health and Ageing - UCL
National Consortium of Intelligent Medical Imaging (NCIMI)
National Institute for Health and Care Research (NIHR) Bioresource
National Institute for Health and Care Research (NIHR) Clinical Research Network
National Pathology Imaging Co-operative (NPIC)
Neonatal Data Analysis Unit (NDAU) – Imperial College London
Newcastle upon Tyne Hospitals NHS Foundation Trust
NHS DigiTrials
NHS Education for Scotland
NHS England
NHS Scotland
NHS Wales
Norfolk and Norwich University Hospitals NHS Foundation Trust
Northern Care Alliance NHS Foundation Trust
Nottingham University Hospitals NHS Trust
Nottinghamshire Healthcare NHS Foundation Trust
Optimum Patient Care
Our Future Health
Oxford Health NHS Foundation Trust
Oxford University Hospitals NHS Foundation Trust
Parkinson's UK
PathLAKE
PIONEER
Public Health Scotland
Qresearch
Research Data Scotland
Royal College of General Practitioners (RCGP) Research and Surveillance Centre (RSC)
Royal Devon and Exeter NHS Foundation Trust
Royal Free London NHS Foundation Trust
SAIL Databank
South London and Maudsley NHS Foundation Trust
techUK
The Brain Tumour Charity
The Generations Study
The Industrial Centre for Artificial Intelligence Research in Digital Diagnostics (iCAIRD)
The London Medical Imaging & Artificial Intelligence Centre for Value Based Healthcare (The AI Centre) - Kings College London
The Professional Record Standards Body (PRSB)
The Renal Association
The Royal Marsden NHS Foundation Trust
UK Biobank
UK Dementia Research Institute (UK DRI)
UK Longitudinal Linkage Collaboration (UK LLC)
UKCRC Tissue Directory and Coordination Centre
Understanding Patient Data
University College London Hospitals NHS Foundation Trust
University Hospitals Birmingham NHS Foundation Trust
University Hospitals Bristol and Weston NHS Foundation Trust (UHBW)
University Hospitals Coventry and Warwickshire NHS Trust (UHCW)
University Hospitals of Leicester NHS Trust
University of Nottingham
University of Sheffield
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