Overview
Achieving widespread adoption of internationally recognised data standards across the UK is at the core of the Alliance’s mission.
Data standards are crucial to the success of health data science, providing consistency, comparability and reproducibility across diverse data assets and enabling robust and reliable research across different regions and countries
However, the healthcare, research and data infrastructure is complex and fragmented – frequently lacking common standards and practices.
Our focus is to facilitate the adoption of existing standards, for interoperability and usability of health-related data, only developing new standards where there is a clear unmet need.
We work in collaboration with our members to achieve agreements on, and drive the adoption of, best practices for data curation, management, and analysis.
This is essential to our objective of maximising the trustworthy use of health data for the benefit of the public.
Our approach
One of our principal mechanisms for the community development and evaluation of data standards is the Data Officers Group, chaired by Geoff Hall, Professor of Digital Health, at University of Leeds, honorary consultant in medical oncology at Leeds Teaching Hospitals and Chief Clinical Data Officer at HDR UK.
The Data Officers Group includes representatives from Alliance member and partner organisations across the UK and addresses key challenges in data curation, quality and management – identifying available solutions, and agreeing actions and priorities. There are currently three priority areas of work:
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Recommendations and Outputs
The Alliance is shaping data standards in many ways. Its papers and publications include:
Outputs from the work on common data models can be found here.
