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Welcome to the Alliance Member Spotlight – a blog series showcasing impactful initiatives and success stories from across the UK Health Data Research Alliance. Each post highlights how members are contributing to our shared mission: to accelerate improvements in biomedicine, health and care by encouraging the widespread...

A think piece from Damilola Awe, who joined the Information Governance team through the HDR UK’s Black Internship Programme. During her internship Damilola developed the safeGUARDS toolkit, a collection of existing resources to assist with SafeGUARDS adoption.

The aim of the 'Stewardship' principle is to ensure data is managed with care and professionalism. Effective stewardship involves an agreed upon set of standards including the development of training, career progression and support mechanisms that are standardised.

The aim of the 'Deliver' principle is to ensure that commitments to data governance and safeguards are put into practice effectively. It focuses on meeting agreed standards, fulfilling responsibilities and demonstrating outcomes that align with public perspectives.

The aim of the 'Responsible' principle is to ensure that research access and benefits are fairly distributed across society. The principle supports strategies to include under-researched and marginalised communities, promoting ethical research outputs, empowering communities to shape their data.

The aim of the 'Aligned' principle is ensuring governance processes and accreditation standards work together, promoting common standards for accreditation and reporting. The principle encourages shared decision-making systems and the adoption of recognised frameworks to maintain consistency and manage risks.

The aim of the 'Understandable' principle is to make use data clear, transparent and accessible to all stakeholders. It means using inclusive and respectful language to explain research governance and safeguards, adopting good practice standards for openness and sharing information in formats that are accessible and...

The aim of the 'Guided' principle is to ensure that decisions around secure data environments are shaped by meaningful public involvement. Bringing together diverse perspectives to review, refine and continuously improve policies that govern data access.